The post-surgery Kuato update

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Sorry, I should have posted an update a while ago.

For those who haven't heard, Kuato has officially kicked my ass. The doctors couldn't remove the tumor, as there was not one, but six of them, and they were all in love with some major organs of mine. They took enough to verify that the cancer is indeed Leiomyosarcoma.

So, I'm at Mike's and Lorrie's, vegging out and slowly getting better. The doctors were unable to do much when then performed the surgery, which sucks beyond belief, but makes the recouperating easier. My main complaints are constipation and very, VERY swollen legs.

I'll be staying here for the next three weeks or so. Then I have NO idea what's happening next. Since we know now that this is inoperable, my options are a bit limited. I'll be working on getting an oncologist this week, and a general physician. I'll probably go back to work, perhaps in Tucson, perhaps in Phoenix, as a position with Sonus just opened up here.

My further care depends on whether chemo is an option for buying more time, or if the best course of action is to go for comfort and just ride the wave as long as I've got. I'll let you know how those discussions go.

I can't believe the outpouring of love and generocity you have given me through all this. You have no idea how much it has meant to me. Thank you.

Comments

  1. Great to hear from you Joe. I hope Mike and Lorrie are looking after you !

    We've never met, but after listening to you on KAMN and SoSF for so long, you feel like a friend.

    Stay comfortable, stay cool, and know that you're surrounded by people who love you.

  2. I couldn't have said it better myself.

  3. Glad to hear you have the support of friends close by, Joe. You have best wishes still coming to you from listeners and friends across the planet.

    Brightest blessings of health, strength and recovery to you.

  4. All the best from a long time fan! And ditto from me on Matt's comment above.

  5. Hey Joe:
    We're all rootin' for ya here in T.O. Looks like a job for Harry Dresden - we'll whip up a spell that erases cells with the wrong mojo !

    All kidding aside. Please, please consider going to a certified acupuncturist before you take the chemotherapy route ( i've studied alternative healing for eight years - gotta do something when film work is scarce ). Chemo kills EVERYTHING - acupuncture works on falutly meridians that are blocked and has produced remarkable reversals on tumours: case in point my mother had an adenoma the size of a grapefruit on her thyroid - dr.s said we'll have to cut out everything and you'll have no voicebox - acupuncturist is reducing the tumour without surgical intervention. WE LOVE YOU!

  6. cardinal fang says:

    Best wishes from a long term ninja's fan - keep your spirits up! As well as the accupuncture suggestion look up "pau d'arco" or "lapacho" tea , it doesnt taste "that" bad is used in some cultures as an anti-cancer medication (and is growing in use everywhere else for same) and will at least get you back to crapping like a trooper!

    prayin for ya dude

  7. Yvonne, my favorite voicemail ever!

    I've looked for you name everywhere and couldn't find it. What do you do for The Dresden Files?

  8. My thoughts and prayers are with you, Joe. I think we all agree with Matt's sentiment -- you've become a part of all our lives through Farpoint Media, and though we may never meet in person, you hold a special place in all of our hearts. God bless you!

  9. Joe,
    Funny, I just kinda surfed here. I happen to be an Audiologist and my dad also has LMS. He was diagnosed in 2000. Please go, run to a sarcoma center. LMS is a tricky cancer and you need to get the CORRECT treatment. GOod luck!
    Kim